From the State Coordinator: What the Ms. Wheelchair Washington/America Program Means to me

What the Ms. Wheelchair America Program Means to Me:


In 2000, I was moving to Seattle from Miami, and I was researching disability organizations in Washington, and stumbled upon the Ms. Wheelchair America website. I saw that in 1996, Ms. Wheelchair Washington had gone on to become Ms. Wheelchair America, her name is Elaine Stefanowicz. I thought since I was moving to Washington, I would try and get in contact with her since I was moving to Seattle not knowing any other women in wheelchairs. In the last 17 years since I have been in a wheelchair, I have always found it so important to have women friends that are in wheelchairs, not only just for the camaraderie, but for support and friendship.

So after I got to Seattle, I tried to get in contact with Elaine, but I had the wrong contact information, and it wasn’t until 5 years later that our paths finally crossed. I was so excited to finally meet her in person because she was a Ms. Wheelchair America, and just reading about her she seemed like a great person. I happen to be at an event she was at and she was recruiting contestants for the 2006 Ms. Wheelchair Washington Pageant, and when she told me about it, I didn’t even hesitant, and said where do I sign up?

When it came time for the 2006 Ms. Wheelchair Washington pageant to happen, two other contestants dropped out at the last minute, so I had the option to enter as an Independent Delegate. Since the pageant got canceled, I decided to still apply as a Independent Delegate, knowing that the next year I would become the State Coordinator. I sent my application into the National Ms. Wheelchair America Program, along with letters of recommendation, and then I was accepted as the 2006 Ms. Wheelchair Washington. I spent my year focusing on the importance of volunteering, and traveling around Washington state doing appearances, and advocating on behalf of the people with disabilities in Washington. I met so many incredible people, made a lot of connections, and it was such an honor to be Ms. Wheelchair Washington 2006.

Although , I did not win the title of Ms. Wheelchair America that year, to me it was just an honor to have the experience of meeting such amazing women with disabilities from all over the country. The week that I spent at the Ms. Wheelchair America pageant, truly was one of the best weeks of my life. I believe that everything happens for a reason, and although the pageant at the State level was canceled, if it had not been canceled, then I would not have had to be an Independent Delegate, and I wouldn’t have gone on to become the State Coordinator for the Ms. Wheelchair Washington Pageant. So, as my year as the titleholder came to an end, I held my first state pageant. I was new to coordinating the event and recruiting contestants, but I pulled it off, and I handed the title over to Sigrid Laegried, who became Ms. Wheelchair Washington 2007.

Since then, I have successfully held 4 pageants, and each year recruited more and more contestants. Although, I know many women with disabilities in Washington State, all of the contestants who have been in the past 3 pageants I didn’t know many of these women personally. In the past four years, I have had the opportunity to meet more women in Washington State with disabilities by being the State Coordinator, and I have created friendships with all of the contestants. It has been such an honor to be able to meet these ladies that I maybe would have never have met and learn about them, and learn from them.

Each titleholder of the pageants have become great friends of mine, and even now the year I spent with Sigrid Laegreid (2007), Meg Paulsen (2008), Jannette Saxton (2009) and now Krystal Monteros (the 2010 Ms. Wheelchair Washington), I know these women are going to be life long friends. I really enjoy being a mentor to all of the Ms. Wheelchair Washington’s and I do whatever I can to assist them on their journey through their year. I feel truly blessed to be the State Coordinator and bring more awareness to the Ms. Wheelchair Washington program, as well as the Ms. Wheelchair America Program. I will always remember my year as Ms. Wheelchair Washington 2006, but I will never forget the incredible friendships I am making as the year's continue, and I plan on being the State Coordinator as long as possible.

The Ms. Wheelchair America Pageant to me, is actually more like a program to bring awareness not just to women with disabilities, but to all people with disabilities. It opens up a lot of doors for women with disabilities, and each contestant over the last 30 plus years, I am sure has benefited from being a Ms. Wheelchair for their state. I have been inspired by many of the contestants locally, and nationally, and I am excited to see what the future holds, because it is a world of opportunity for women in wheelchairs.

So to all of the Ms. Wheelchair Washington's: As each day goes on in my daily life and no matter how bad things may get, I think of all these wonderful women who have been brought into my life over the past 4 years and I am truly blessed!,

So thank you for being my sitting sista's
Sincerely,

Your State Coordinator
Tammy

intergrated wheelchair dance jam on April 29th - Wow what fun!

On April 29th, my friend Jenny and I bravely traveled by bus from Tacoma to Seattle beause we wanted to dance....

There is a intergrated wheelchair dance group founded by Charlene Curtis, called Light Motion.  They have been performing for 20 plus years all over the world.  My friend Jenny and I had wanted to attend one of their community dance jams for a while and when we went on April 29th, it was awesome!

I was dizzy by the end of the night, but to learn some new ways to dance and move in my wheelchair was great, plus it was just so much fun meeting some new people.

The State Coordindator, Tammy Wilber has danced with Light Motion in the past and was there and got some footage of me dancing. http://www.facebook.com/#!/video/video.php?v=390702509395&ref=mf

(Somehow Tammy took the footage and she is not sure why it is on her facebook page sideways) Anyway, enjoy!

I look foward to doing some more dancing in the future....

Oh and by the way, Light Motion dance group and Tammy will be performing at the Seattle Center House on May 4th at 7PM. This is in conjuction with an event dedicated to the arts of people with disabilities.

April 7th- TACID Fundraiser- Guest Speaker

On April 7th I was invited to attend the High Tea event at the Tacoma Area Coalition for Individuals with Disabilities. It was such an uplifting experience! The number of people who are dedicated to helping the disabled community in their own ways was just phenomenal! The entertainment was great! I would be glad to attend any other event with this truly remarkable group of people. Thank you so much to everyone for making this event what it was and for inviting me to attend! I have to send a big “thank you” to Jannette Saxton for accompanying me to this night of fun! We had a wonderful time!

All Ms. Wheelchair Washingtons

Supporters of Ms. Wheelchair Washington and Friends

Don Stevenson- The Pacin’ Parson

Don Stevenson

The Pacin’ Parson

Auburn Washington’s Don Stevenson is at it again, walking over 300 miles to the Cape Disappointment Lighthouse in Ilwaco, WA and back to raise awareness for the Spina Bifida Association of Washington State. He is 74 and will be walking 30 miles a day!

Walking for others, to encourage and inspire.

You can support Don’s efforts by making a contribution to the Spina Bifida Association of Washington State
Online at www.firstgiving.com/sbaws. Or send a check noting “Walk to the Light” to:

Spina Bifida Association of Washington State
2128 N. Pines Road, Suite 17-3
Spokane, WA 99206

March 18 - April 5, 2010

Don was born in Columbus, Ohio on January 4th, 1936 in the middle of a snow storm. He was number four of eight children. He dropped out of high school to join the US Marine Corps in 1954.

After leaving the Marines in January, 1957 he completed 3 years of high school and 4 years of college in 4 years, receiving his high school diploma in 1959, and his Bachelor of Theology Degree (cum laude) in 1961.

Don lives in Auburn, WA. He is a Christian author, former school teacher, pastor, volunteer firefighter, and truck driver.

After 28 years of service with Darigold Inc. he retired in 1994 to devote his time to writing.

He and his lovely wife Loretta have been married since 1983. Don says of her, “She’s such a game soul and a real sport! I’m a hard man to love, but she makes it look so easy.”

Of his reason for walking, Don explains, “God has blessed me with good health, and out of gratitude I’ve tried sharing that blessing with those who are less fortunate. I'm a happy, wealthy man. I don't possess much of this world's goods, but I do possess that which money cannot purchase—Love, Joy, and Peace!”

• Don has jogged over 40,000 miles of walking for various charities since 1998.

• at age 62 (1998) he walked (3,000 miles) from Seattle to Portland, Maine for Alzheimer’s;

• at age 63 (1999) he walked (900 miles) to lighthouses in Washington State for Alzheimer’s;

• at age 64 (2000) he walked (4,000 miles) from Tijuana, Mexico to Anchorage, Alaska for Multiple Sclerosis;

• at age 65 (2001) he walked (3,000 miles) for Multiple Sclerosis from Seattle to New York City; at age 66 (2002) he walked 8,000 miles in Auburn, WA’s Game Farm Park for Multiple Sclerosis;

• at age 67 (2003) he walked a thousand miles over 12 of Washington State’s mountain highway passes for Alzheimer’s,

• at age 68 (2004) he hiked round trip from Auburn, WA (c200 miles) to Mt. Rainier for the Maria Federicci Trust Fund;

• at age 68 (2004) he climbed to the 12,300 foot level of Mt. Rainier for the American Lung Association.

• at age 68 (2004) he hiked 106 miles blindfolded across the Cascade Range for the Maria Federicci Trust Fund;

• at age 69 (2005) he hiked 1,750 miles to all the county seats in Washington State for Alzheimer’s;

• at age 70 (2006) he hiked 2,400 miles to all 88 counties of Ohio for the American Cancer Society.

• At age 71 (2007) he began a 13,000 mile walk for Huntington’s Disease Society of America.

• At age 72 (2008) he finished the 13,000 mile walk for the HDSA by walking from the Seattle Space Needle to New York City’s Empire State Building.

• At age 73 (2009) he walked 360 miles to raise awareness for the Spina Bifida Association of Washington State.

• At age 73 (2009). besides giving moral support for Make A Wish Foundation, He walked 280 miles from Cleveland, Ohio to Cincinnati for Special Needs Kids of the Special Olympics Organization.

Abilities Expo Newsletter

February 2010

Abilities Buzz

Dear Buzz Subscriber:

Abilities Expo Los Angeles is coming up fast on April 9-11 at the Los Angeles Convention Center. Check out www.abilitiesexpo.com for all of the details. Don't forget to forward this e-newsletter to your family, friends and colleagues.
Email us at klara@abilitiesexpo.com if you have any questions relating to disabilities. We will address all of your questions and will post some answers in future issues of the Buzz.

News
Abilities Expo Extreme!

If you were hoping for a low-key trade show that would lull you peacefully to sleep, you may want to keep looking. On the other hand, if you want a high-energy expo that not only demonstrates "the extreme" but actually makes you a part of it, then pull out your calendar (or calendar app) and block out April 9-11, 2010. Held at the Los Angeles Convention Center, Abilities Expo helps attendees with disabilities take what they thought were their limitations and leave them in the dust. With the help of three extraordinary wheelchair athletes-Mark Wellman with his adaptive climbing wall, Aaron Fotheringham with his wheelchair stunts and Trevor Snowden with his wheelchair obstacle course-visitors will experience extreme sports and redefine their ideas about what they can accomplish. Adaptive Climbing Wall Picture 25 feet of artificial rock that can be scaled by anyone , regardless of their level of ability. All that is necessary is the desire to make
the ascent. Mark Wellman, expert mountaineer and founder of No Limits, will take care of the rest. ( read on )

Feature Product Spotlight: FreeWheel TM Wheelchair Attachment
FreeWheel TM Wheelchair Attachment will exhibit at the Los Angeles and New York Metro Abilities Expos on April 9-11 and May 21-23, 2010, respectively. With the right equipment, challenging terrain doesn't have to be an obstacle. Both simple and ingenious, the FreeWheel TM Wheelchair Attachment allows wheelchair users to traverse surfaces that would normally be impossible. A single wheel that easily clamps onto the footrest of almost any wheelchair, the design literally lifts the front casters off the ground and allows an individual greater stability in negotiating curbs, grass, snow, rough roads, uneven ground and more. This adaptive device was the brainchild of Pat Dougherty, a C6-7 quad from Boise, Idaho who was injured in a Motorcross accident in 2003. "I was frustrated at how difficult it was to get around," said Dougherty, proving once again that necessity is the mother of invention. "I knew there had to be a better way." ( read on )

Feature Last Chance: Take This Survey & Tell Us How You Feel! It's your life, and it's your assistive technology: Here's your chance to tell us how you feel! If you or a member of your household uses wheelchairs, walkers, scooters, standing frames, etc., we need your opinions. Mobility Management, an industry publication for mobility professionals including occupational and physical therapists, is taking a survey of consumers who use mobility-related assistive technology. Your answers can help the health-care industry to better understand and respond to your concerns, needs and wishes. It's your right to be heard! The survey should take just a few minutes to complete, but your opinions can help to shape the future of assistive technology. Speak up, speak out...and watch what can happen!

Feature
Do You Get UTIs? By Anthony R. Orefice III
Anthony is a Los Angeles Abilities Expo Ambassador , an antrepreneur and the owner of Wheelie Distribution.
Hello, my name is Anthony and I am a T4, T5, T6 paraplegic due to a motorcycle accident 16 years ago. I learned many tricks from other people with spinal cord injuries throughout the years. I would like to share one with you that has made a huge difference in my life. I fought urinary tract infections (UTIs) all the time. I was using sterile catheters and taking cranberry pills. About five years ago at a spinal cord meeting, a quadriplegic shared with us a product that he found that made his life of battling UTIs a thing of the past. It was a natural sugar that is extracted from cranberries and pineapples, a product is called D-mannose. ( read on )

Letter to the Editor So Much to Do, So Little Time!
Q: I'm coming to Abilities Expo Los Angeles in April and am really looking forward to seeing all the new products. Anything else I should plan for?
A: Absolutely! While it is true that people depend on Abilities Expo for solutions through the latest technologies, products, services and resources, they have also come to expect more. They want to gain more knowledge and insights about pressing disability issues, they want to get involved, they want try new things and they want to have a little fun. Abilities Expo delivers on all counts through a host of events, activities and workshops right on the show floor! Here's what's on tap for LA: ( read on )

Feature
PepsiCo's "Bob's House" Breaks New Ground in Inclusive Advertising

Amidst the sound and fury of the much-anticipated Superbowl Sunday commercials, one stood out for its uncharacteristic silence and the strength of its underlying message. "We live in a hearing world, where deaf people have to operate within that hearing world," said Sheri Christianson, PepsiCo employee. "In this ad, what we've done is kind of reverse the roles. It's a deaf world and we've included the hearing world." In its Superbowl Sunday broadcast debut, "Bob's House" capitalizes on a popular joke within the deaf community. It depicts two deaf men on their way to a Superbowl party who drive up to a dark street only to realize they have no idea which is the right house. Their solution is to lay on the horn as drive slowly down the street. The house that does not light up belongs to their friend, Bob, who is also deaf. ( View the commercial. ) ( read on )

Proposals for Spina Bifida Association's 2010 Young Investigator Awards

Launched in 2005, Spina Bifida Association's (SBA) Young Investigator Awards research program is unique in that it fosters scientists who are early in their careers and who will dedicate their skill and expertise to improving the lives of those with Spina Bifida. The purpose of the awards is to provide either initial or continuing financial support to a newly-independent investigator in an established research program. The research to be conducted by the fellow may be basic or clinical research but must be relevant to Spina Bifida.

This year SBA and Spina Bifida Foundation (SBF) are pleased to announce the continued availability of funding for research through this program. The 2010 Young Investigator Awards will be providing up to three fellowships. They are:

* The Ashley Rose Advancement in Research Award  will provide up to $50,000. The Ashley Rose Foundation was established by Raymond and Linda Pitek in 1997 in honor of their baby, Ashley Rose. Areas of particular interest are epidemiology and causes of miscarriage related to neural tube defects, although other related research is welcome.

* The Tethered Cord Research Award provides up to $40,000. Areas of particular interest are Tethered Cord Syndrome and related clinical and scientific areas.

* The Schneider Charitable Trust Award for $25,000 was established by Hollister, Incorporated in 2008. Areas of particular interest are continence and related clinical and scientific areas.

Project length: One year

Deadline: All proposals are due before 9:00 pm EDT on Monday, May 10, 2010.

Additional Information: For detailed proposal requirements and more specific information on each award please visit SBA's online Research Center at www.spinabifidaassociation.org. You may also email Joe Giffels, Research Director at jgiffels@sbaa.org.



Robin Austin
Communications Specialist
Spina Bifida Association
4590 MacArthur Blvd. NW
Suite 250
Washington, DC 20007
202-944-3285 ext. 29
800-621-3141 ext. 29
Fax: 202-944-3295

Krystal Speaks at her college

On March 31, 2010 I was a part of the Multicultural Advisory Council meeting held on the Tacoma Community College campus. It was a great honor to have been invited to be with such a prestigious group of people working together to better assist the diverse people within the city of Tacoma. Everyone from Tacoma Community College employees to program directors and speakers from the Tacoma Area Coalition for Individuals with Disabilities to Pacific Lutheran University board members were in attendance. As a student on the TCC campus, I would have never thought I would have the chance to speak in front of such a driven group of people with the same focus of bringing all parts of the community together. I would like to thank everyone who was involved in getting me to this event.

Thank you for the Support- We had an awesome Walk N Roll

As a board member for the Spina Bifida Association of Washington State, I took on the role as Co-Leader for our 1st annual Walk N’ Roll. It was held March 20, 2010. I am happy to report that it was a success! A large group of people showed up to participate. There were so many little wheelers there to learn more about other kids like themselves and more important, to have fun! Aaron Fotheringham demonstrated his skills in breaking the boundries of people with Spina Bifida through “Hardcore Sitting”. He brings truth to the idea that there are no limits except for those that we place on ourselves and that we allow others to place upon us. I had such a blast being able to talk one on one with all the wonderful children with disabilties! And I must give a big “Thank You!” to all the previous Ms. Wheelchair Washington’s who came out to show their support! I look forward to doing it all over again next year!

Ms. Wheelchair Washingtons off to the Abilties Expo

I am so excited that 3 Ms Wheelchair WAshingtons are coming to the Abilities Expo. I know you are holding your pageant there and we would love to help with it!!! Krystal Monteros 2010 MS Wheelchair WA is coming and myself and Meg Paulsen 2008 MS Whelchair WA. Although our titleholder are competing for the title of Ms Wheelchair America we are all still a wondeful group of women who do this for the same reasons and that is fo adovacy and awareness etc....So I hope you would be excited to have us as guest or speakers or greeters or volunteers. So Let us know how we can help Ms Wheelchair CA 2010 be great with love and support from Your Washington sisters!!!
TAmmy

Parent to Parent Support Program

Learning that your child has a disability can be a bewildering time, a time full of questions and concerns. Having someone to talk to that has “been there” can provide the hope that you are not alone. We have a network of trained volunteer Helping Parents, all of whom have children with developmental disabilities. We match new parents with an experienced parent who has a child with a similar diagnosis and family circumstances.

Helping Parents are available to listen to your concerns which can be helpful in coping with these challenging new xperiences and feelings. In addition, we can help give you guidance and assistance with issues that arise throughout childhood, such as working with schools, health care and developmental concerns. Parent to Parent wants you to know that we understand, we care and are willing to help because we all have been there.

Parent to Parent Provides:

-- Matching of trained, experienced “Helping Parents” with parents who have children with similar     diagnoses and family circumstances, to provide personal support
-- Current information about various disabilities
-- Information and referral to community resources and services
-- A place to connect with other parents through social & recreational events, e-mail support networks,  support groups, and periodic educational trainings
-- Training for parents who would like to become volunteer Helping Parents
-- Public awareness, outreach and training to the community regarding people with disabilities and disability issues

TACID High Tea (April 7th at 5:00 pm).

On April 7th from 5:00 to 6:30 pm, TACID will host a high tea entitled The Word . . . The high tea will mark the first of a series of events to celebrate the 30th anniversary of TACID. Antonio Edwards, Jr., Tacoma's Poet Laureate will recite his favorite poems, humorous storyteller/comedian Barbara Sellers will perform, and authors Ruth Tiger and Mark Haward will do short readings from their books. Jannette Saxton, Ms Wheelchair Washington 2009 (First Runner-Up Ms Wheelchair America), and Krystal Monteros, the newly selected Ms Wheelchair Washington 2010, will be on hand to welcome guests. English style biscuits (cookies) and sandwiches will be provided along with tea, coffee, and fruit juice. The free event will feature tours of the TACID facility. For more details check out our High Tea Flyer.

All requests for reasonable accommodations including ASL interpreters and assistive listening devices for this event should be made to the TACID Receptionist 253-565-9000 ext. 10 (voice) or to barbara@tacid.org at least one week before the event.

MY HERO WAS A FRIEND NAMED TONY- YOU WILL ALWAYS BE REMEMBERED

As Ms. Wheelchair Washington 2010, I would like to dedicate this year to the best friend anyone could ever ask for Tony McCane. At only 32 years old Tony died of pneumonia on March 10, 2010. I remember seeing him around Tacoma Community College always smiling, laughing, and making jokes… just wondering, “It’d be nice to have that great spirit!” He gave anything to help someone else. At the time I was very depressed, lonely and unmotivated to the point that I was bulimic. From the first time we talked, we were together constantly. He made it his mission to make sure I never felt alone again. If I sent him a text message at 1am saying I need to talk to you tomorrow, he called me and said “tomorrow the problem will be gone, let’s talk now.” According to Tony, if there’s a problem, acknowledge it, and work on fixing it. There is no shame in that, but honor. He never placed judgment on anyone.

As time went on, I began to overcome all my insecurities and negative feelings. We realized, we both had a passion for people with disabilities, young people, and people who weren’t quite on the right track. He began to include me in every mission he had.

Once I caught on, I took his passion and applied it to my visions. I began to accept my problems as things that make me stronger. Just like Tony lived to help those around him, I began to develop the same heart. Now, I have achieved my highest accomplishment yet. I am Ms. Wheelchair Washington 2010! I would not be here today if it wasn’t for him instilling so much time and love into my life. It’s my turn to take what he gave me and use it to carry on his legacy with my title as Ms. Wheelchair Washington!

It’s still unbelievable but he’s gone to be with Jesus. For the past year or so, we both increased our schedule so much that we didn’t have as much time together as we did before. But God blessed me with the privilege of being with him and the family for the entire day before his passing. It was with a grateful heart that I dedicate this year in the Ms. Wheelchair Washington community to Tony McCane. Everything I do is because he took the time to comfort me. It showed me the power that lies within me. I have the power to give someone what Tony gave me. LIFE! He changed lives!

I want to say “thank you” to all the past Ms. Wheelchair Washington’s! You have all been so supportive through all of this! Thank you Jesus for all that you are and for giving me the honor of having Tony in my life! Because of Tony my life has not been the same! I am truly blessed! I LOVE YOU TONY!!!!!

“We will miss Tony. He was very much loved by all. He had a heart of gold, a smile that could light up a grand ballroom, a laugh that was contagious, a joy that brought peace in the midst of chaos, and words that brought encouragement when no one else believed in you. He passed early but he lived a full life and left a legacy that few can compare to. We could all learn from Tony… He went through so much and still kept that beautiful smile on his face, he still managed to glow. His spirit marks his legacy and we should all live our lives in light of how he lived his. I love you Tony, thank you for everything, you will forever be remembered in my heart, mind and spirit. You are my inspiration…” -- Klarissa Monteros

ARC OF KING COUNTY

Advocating the right of children and adults with developmental disabilities to live, learn, work and play in the community! Improving the quality of life for us all!

Upcoming Events:

* Correction : The Arc of King County Parent Coalition was incorrectly identified as the King County Parent Association in January's enews letter. Please note that it should have been stated as the King County Parent Coalition.

The King County Parent Coalition is a grass roots program of The Arc of King County comprised of parents and family members who take non-partisan action to improve the lives of their family members who have developmental disabilities. This program is funded by a grant from the King County Developmental Disabilities Division.

-- February 23rd: Parent Teacher Student Association Special Needs group, Lake Washington school district
-- March 3rd: Spread the Word to End the Word day of awareness
-- Advocacy Days: January - March
-- The Learning Group takes place on Tuesdays at The Arc from 11:00am - 12:30pm to prepare for the following Advocacy Day. This group is open to all. Learning Group will be held on the following dates:
February 23 ~ March 2

Advocacy Day will take place on Wednesdays in Olympia. Registration is required for Advocacy Days. Those interested will meet at The Arc prior to travel to Olympia. Advocacy Days and the associated topics will take place on the following dates:

-- February 17 HB 2078 Report Jail/Correction
-- February 24 Independent Living Day Rally
-- March 3 Session Wrap-up
-- The Arc's Annual Living Our Legacy Awards Ceremony and Luncheon will be held at the Seattle Hyatt at Olive 8 on May 27, 2010 .

Community Living Grant (Deadline March 31, 2010):  Applications are currently being considered for the Community Living Grant. Please send your applications to The Arc of King County, Attention: Community Living Grant Program, 233 Sixth Avenue N., Seattle, WA 98109 . The Arc of King County's grant committee will review each application and notify recipients by mail

For more information contact Mary Jo Magruder at mjmagruder@arcofkingcounty.org or call 206-829-7010.

Let Us Work Together to End the Use of the "R-Word"

By Patricia McNiff, Development Program Assistant at The Arc of King County

Huge momentum is underway to, once and for all, remove, from today's vernacular , one of the most offensive and derogatory terms that has been thoughtlessly attributed to people with intellectual and developmental disabilities . Advocates have decided that it is imperative now to make it clear that this word has denigrating effects against people with intellectual and developmental disabilities, and is no longer acceptable to use.

Efforts are being made on many fronts to educate and encourage movement away from the derisive use of the "R-word". It is critical to raise the level of consciousness throughout, so that it is recognized by all that this word is indeed a slur, even if it is said without thinking, or true intention of offending. It must be known that whether intended or not, the use of the R-word is resoundingly hurtful to people with developmental disabilities, their families and friends.

The Respectful Language Bill, HB 2490 , is an important first step in establishing acknowledgement that ridding of the word is appropriate. This bill, currently under consideration by the Washington State Legislature, will re place the word, "mental retardation" with "intellectual disability" in all state language. Passage of the Respectful Language bill will set a precedent and show solid support for Federal Bill S.2781 , known as Rosa's Law, which would also remove the language "mental retardation" from all federal laws. Rosa's Law will signify alignment on a national level that this language should not be used.

Evangeline Abadinas, who actively advocates on behalf of herself and The Arc of King County, gave testimony on January 15th in support of the Respectful Language bill during a p ublic hearing held by the Washington State House Committee on State Government and Tribal Affairs. Abanidas urged the members of the House Committee to pass this legislation. She described how this bill will impact, not only her life, but also the lives of many, by saying, "I want you to know that to use the word retarded is not respectful. It is a word that hurts. When people call someone retarded, they are calling them a name, and that is not respectful to other people. It hurts."

In parallel efforts, The Special Olympics is a driving force behind the Spread the Word to End the Word campaign, designed to empower individuals to raise the common level of awareness to the disrespectful nature of the R-word, by making a Pledge to never use the word. This is a movement that was begun by young people who wanted to make a difference in their local communities to ensure respect for all, and to draw attention to abilities, not disabilities.

A day of awareness has been named for March 3, 2010 to Spread the Word to End the Word. This day no longer remains an ordinary day; it has now become an extraordinary day. All are urged to take a moment on this day, or any day, to pledge and make a commitment to oneself to no longer tolerate the word. By doing so, an example will be set to encourage others to also refrain from using the word, thereby emphasizing respect for all.

These combined efforts, along with the dedication of every individual, will be the key to success. Education will prove pivotal to raising the level of society's consciousness to secure dignified language for all. It is from this understanding that will create motivation to refuse to use the R-word and to mandate respect for all individuals. Now is the time.

Take action today during Advocacy Days

You, too, can make a difference today. Take a moment and call your representative, write a letter, or send an email expressing your concerns regarding the developmental disabilities bills of interest that directly impact the community, and are currently being considered by the Washington State Legislature. Look up who your WA state representatives are and find out how to contact them. Another suggestion, is to thank your representative for their leadership of particular bills that are important to you during this legislative session. For legislative updates, sign up for The Arc of Washington S tate's action alerts and weekly Olympia Insider news and information to keep yourself informed on continuously evolving bill activity. We, at The Arc of King County, need your voice to be heard now!

For more information about how you can help during Advocacy Days, please visit The Arc of Washington State's Legislative Action Center . Or contact Mary Jo Magruder at mjmagruder@arcofkingcounty.org or call 206-829-7010.

For questions or comments, please contact Patricia McNiff at pmcniff@arcofkingcounty.org , or call 206-829-7001.

In Related News

The Arc of the United States recently made a public statement in response to an unfortunate circumstance, first reported in The Wall Street Journal, where Chief of Staff, Rahm Emanuel expressed his displeasure by using the R-word during a White House policy meeting in August. The Arc of the United States issued a press release on January 27th condemning this inappropriate remark. The casual use of this word, by a powerful government official, demonstrates its pervasiveness in today's society. Timothy Shriver, CEO of the Special Olympics, also called attention to the incident on January 26th in a letter to Rahm Emanuel , which expressed disappointment in Emanuel's poor choice, pointing out the derogatory effects the word has on many.

Mitch Freedman Joins The Arc of King County Board of Directors

The Arc of King County welcomes Mitch Freedman, who will generously serve as a member of its Board of Directors. Mitch Freedman is a financial executive with over twenty years of experience in the accounting and investment industries.

Currently, he is the Corporate President and Founding Partner of Mitch Freedman PS Inc. in Bellevue, Washington providing tax preparation, retirement & estate planning, and investment consulting services for individuals, families and businesses.

His prior career experiences include working as a staff accountant for Fluery & Company PS of Seattle in addition to serving as Assistant Vice President of Financial and Regulatory Reporting for Shearson Lehman Commercial Paper, Inc. in New York.

Mitch is involved with the Autism Society of Washington and has performed its treasury functions for the past two years. He also serves on several boards as a member of the Bellevue Breakfast Rotary Club.

Mitch expressed his motivation to serve as a Board Member for The Arc: As a parent of two children with special needs, our family has been on the receiving end of services that The Arc of King County dedicates itself to through its mission and vision. Therefore, I know how important The Arcs work is and Im now in a position to offer help to others. His hope is to offer expertise, insight and direction as a CPA, financial advisor, parent and friend.

Volunteer at The Arc

Are you looking for a way to spend your time helping to make a positive difference in another's life? The Arc of King County's volunteer program offers you the opportunity to do just that. It is also a great way for high school and college students to contribute in a positive way, while gaining professional work experience. Come add value to The Arc, meet new people and have some fun .

Your experience is important to us, so we will work with you to find a role that best suits your interests and abilities. There are many roles to chose from at The Arc, so come, add value, meet new people and have
some fun. We look forward to meeting you!

Fill out the volunteer application here today and get started at The Arc!

Contact Aaron Clarry to learn more about these great volunteer opportunities at 206-364-6337 or aclarry@arcofkingcounty.org

PAGEANTS FOR ALL

WHAT IS HAPPENING IN THE SPINA BIFIDA WORLD

On March 20th, 2010 we will hold our first ever but annual Walk-n-Roll walk in Lacey, Washington. There are many celebrities scheduled to attend so I hope you can be there. Please register above, join an existing team, or create one of your own and support us financially in our cause.

Walking to the Light

Auburn Washington's Don Stevenson is at it again, walking over 300 miles to the Cape Disappointment Lighthouse in Ilwaco, WA and BACK to raise awareness for the Spina Bifida Association of Washington State. He is 74 and will be walking 30 miles a day. You can support Don by making a donation to the SBAWS. Don will be walking from March 18th to April 5th, 2010.

Starting your own Personal or Team Page is Easy:

Click on the "Get Started" Button above. Follow the links to create your own page. Personalize the text and the photo on your online fundraising page to express your passions and purpose. Send the link out to your friends, family and colleagues - anyone you think will help you reach your goal.

The Spina Bifida Association of Washington State is a group of people affected by Spina Bifida including family members, friends and professionals. Anyone with an interest may join. Dues are not a requirement! Donations are strictly voluntary, but greatly appreciated. We'd be happy to have you join in our cause.

Spina Bifida is the most common permamently disabling birth defect in the United States. Spina bifida is more common than muscular dystrophy, multiple sclerosis, and cystic fibrosis combined.

Our MISSION is to promote the prevention of Spina Bifida and to enhance the lives of all affected. Please join us in our cause!

You can donate online using your debit or credit card through the link on this page or send us a check at the address below.

Spina Bifida Association of Washington State
2128 N. Pines Rd., Suite 17-3
Spokane, WA 99206-6633
Toll Free 888-289-3702 Phone 253-589-3700
Fax 509-327-2420 Email sbaws@yahoo.com
Website: www.sbaws.org

EARLY REGISTRATION FOR SBA’S NATIONAL CONFERENCE ENDS MAY 31! http://conference.spinabifidaassociation.org/site/c.qkI1KgMTIrF/b.5591643/k.BDE2/Home.htm
Register today and SAVE $60!
A room rate of $139/single or double plus tax has been secured for attendees. Reservations can be made by calling the resort directly at 800-233-1234. Be sure to tell the reservationist that you are with the Spina Bifida Association conference. The deadline for booking rooms at the discounted rate is June 8, 2010.
Register online today at http://conference.spinabifidaassociation.org/.

SEATTLE ADAPTIVE SPORTS EXPERIENCE - VOLLEYBALL & TENNIS

Youth Social following at Amy Yee Tennis Center

The Seattle Adaptive Sports Experience offers a clinic in Sitting Volleyball and Wheelchair Tennis Saturday, February 13, 2010 at Amy Yee Tennis Center in Seattle.

Brought to you by Seattle Parks and Recreation - Specialized Programs, Seattle Adaptive Sports and US Paralympics.

This a great place to come learn more about Paralympic sports and meet other people who enjoy being active in sports. All ages are welcome.

-- Are you a person with a physical disability or know someone?
-- Are you a school coach looking for more information on how to get a student involved in adaptive sports?
-- Are you a recreational, physical, or occupational therapist looking for activities to introduce to your clients?

There will be opportunities to watch demonstrations and get on the court for instruction.

Sitting Volleyball with US Paralympian - Silver Medalist Katie Holloway

Wheelchair Tennis with USTA Open Single Champion Anthony Anderson

Receive a US Paralympic t-shirt (while supply last) and poster for attending this clinic. Come learn more about the US Paralympic movement in sports for the physically disabled.

Amy Yee Tennis Center
2000 Martin Luther King Jr Way S
Seattle, WA 98144

3:00 PM - 5:00 PM

Join the Youth Social following the sports clinic:

5:30 PM - 7:30 PM with Camp Casey counselors and Pizza
Amy Yee Tennis Center

Watch for future clinics:

March 6, 2010 - Track and Field with Team Shadow, Jefferson HS Federal Way
April 17, 2010 - Cycling with Outdoors For All, Magunson Park Picnic Area #1

About Seattle Adaptive Sports

Seattle Adaptive Sports is a not-for-profit organization, tax-exempt under section 501(c)(3) of the Internal Revenue Code. SAS is dedicated to the promotion of the well being of physically challenged individuals, by giving them the opportunity to participate and compete in athletic and recreational activities, including basketball, swimming, and track. SAS participants benefit from the physical activity and socialization opportunities offered by the organization, improving self-esteem and physical well being, as well as independence.

For questions about this event or Seattle Adaptive Sports, please contact
Tami English Seattle Adaptive Sports 253-297-5389

Judges at All American Girls Pageant- Krystal and Tammy

We have state pageants coming up in Washington, Oregon, Idaho and Utah!!!

2010 Washington, Oregon and Idaho State Paperwork is now available. Please contact allamericangirl.directors@gmail.com to get your copy. Please remember to indicate which state you are requesting paperwork for.

For States not having state pageants: Become an All American Girl State appointed queen and you can be on your way to our 2010 National pageant to be held this August in Portland Oregon. Each state queen will receive her custom AAG crown, custom embroidered banner, pin and scepter. For more info email allamericangirl.directors@gmail.com

All American Girl is currently seeking Preliminary and State Directors. If you are interested, email us at allamericangirl.directors@gmail.com for more information.

Come and be an All American Girl...We are MORE than just a pageant!!!

County's Powerful Women's Leadership

Summit 2010

WE ARE THE PIPELINE

Saturday, March 6
10:00 am to noon

Commencement Bay Coffee Co.
2354 Jefferson Ave., Tacoma 253-274-1173

Join the discussion: 1) How will we concretely BE THE PIPELINE to identify and encourage our naturally powerful women (we all have power) to run for office? 2) What steps will we take this year to cultivate the next generation(s) of young women's power to prepare them to represent our half of the population?

It is 2010! Women in WA have had the right to vote for 100 years but we still don't have equal representation in elected offices, equal pay, and equal opportunities! I believe too many "women's issues" are still unresolved because we don't have enough women in offices to represent us and vote for (or against) legislation that would fully treat us as equal class residents and participants in our own democracy.

The 2010 elections will be held for precinct committee officers, all state representatives, many state senators, a US Senator, all three US Representatives, three county councilors, and one conservation district office. Will you be running for one of these offices? Do you, like me, know of a few dynamite women who could aptly represent her legislative district with one hand tied behind her back and both eyes blindfolded but no one has invited her to consider running for office?

Last year we talked about barriers to running and strengths we have that the "boys" don't have. Last year you inspired me by running or talking about running. I was disappointed to learn that of the appx. 200 offices up for election in Pierce County, 104 candidates had NO opponent. Ladies, if we don't plan to win, we plan to fail.

Help build our pipeline of women ready to run and lead!

Bring your mother, your daughter, your elected official(s). We have work to do!

Pierce County's Powerful Women's Leadership is a self-directed group started in 2009 to identify and encourage Pierce County women to run for elected offices to represent our half of the population.
Deb Blakeslee 3505 So. Orchard St., #A3 Tacoma, WA 98466, 253-460-3506, deb_blakeslee@yahoo.com

Miracles happen when people's inner convictions are SPARKED!!

The Spina Bifida Association (SBA) Scholarship Program

The Spina Bifida Association (SBA) Scholarship Program is open and accepting applications. The SBA Scholarship Program was established in 1988 to enhance opportunities for persons born with Spina Bifida to
achieve their full potential through higher education. Scholarships from SBA make it possible for the recipient to choose educational pursuits that may otherwise be outside of financial reach. SBA applauds young adults who have the determination to pursue higher education.

Please remember that scholarships are competitive and funds are limited, making it impossible to grant every request. The Scholarship Committee evaluates only complete applications based on the criteria set for the
scholarship program.

All interested students living with Spina Bifida are encouraged to apply by the March 3, 2010 deadline. For more information, or to download an application, visit www.spinabifidaassociation.org and select Quality of
Life under the Programs/Services menu. If you have questions please email 2010sbascholarship@sbaa.org


Tanya M. Coogan, CTRS
Director of Chapter Development
Spina Bifida Association
4590 MacArthur Blvd. NW, Suite 250
Washington, DC 20007
800-621-3141 ext. 23
202-944-3295 Fax
http://www.spinabifidaassociation.org/

Ms. Wheelchair Washington get to know Krystal

Hello Ladies!

I just wanted to touch base again and find out who can make it up to Snohomish this weekend. IF there is going to be a problem with everyone getting up here I am going to suggest that we meet at South Center for lunch as the discussion that I am calling for needs to happen soon. I committed to the Spina Bifida Association that I would coordinate as many of us to participate in the upcoming fundraising event - see info below.

If, for some reason, we cannot all get together I am going to ask that Krystal provide us with the time and location at the park to meet on March 20th - this time should include prep and set up prior to the event. The plan is for us to meet and greet participants as a group representing the Ms. Wheelchair WA program.

Again, I would love to see you all this Sunday, so let's decide where to meet at noon for lunch and discussion. Below is the forwarded press release of the event for reference.

March 20th Chosen for Annual Walk-n-Roll for Spina Bifida

The Spina Bifida Association of Washington State has chosen March 20th as the official date of the Annual Walk-N-Roll for 2010.

Olympia, Washington (Press Release) February 10, 2010—The Spina Bifida Association of Washington State (SBAWS) is gearing up for their annual “Walk-N-Roll” event as part of the National Spina Bifida Walk-N-Roll. The Walk-N-Roll will take place on Saturday, March 20, 2010 at Rainier Vista Park in Lacey, Washington.

Registration for the walk opens at 9:00am with a special program 10:00am and the walk itself beginning at noon. The Walk Route will be contained within this beautiful, flat Lacey park. Anyone interested in raising pledges, offering donations or volunteering for the walk can visit www.sbaws.org and click on Walk-N-Roll or call 360-888-7701 for walker registration information.

By joining others in the Walk-n-Roll for Spina Bifida you are adding your voice to the thousands in support of better tomorrows for those with Spina Bifida.

To lend a helping hand contact one of the Co-Chairs:

Heather Logan 360-888-0782 Heather_Logan@juno.com, or Krystal Monteros 360-888-7701 babykeitho@aol.com or the SBAWS Office at sbaws@yahoo.com

Our Emcee Janet Harding Miss Washington 2008

Krystal Monteros, Ms Wheelchair Washington 2010, SBAWS Secretary & Board Member

Aaron Fotheringham--A young man with Spina Bifida will demonstrate his talents of “hardcore sitting” and his wheelchair back flip, the first person ever to do this. His performance is a once in a lifetime event that you won’t want to miss! Make sure you’re there! See his amazing abilities on line.

Others scheduled to attend:

Ed Kennedy, Chair of SBAWS

Chris Morris, Executive Director of South Puget Sound Parent2Parent

Meg Paulsen, Ms Wheelchair Washington 2008 title holder and current SBAWS board member

Brooklynne Adams, Ms. Thurston County 2009

Tammy Wilber, Ms. Wheelchair Washington Coordinator

Over 250,000 Americans are in the Spina Bifida community. More than 180,000 people in the United States are currently living with Spina Bifida, the most common permanently disabling birth defect. Spina Bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn’t close completely. There are 60 million women at risk of having a baby born with Spina Bifida. Everyday, an average of 8 babies are born that are affected by Spina Bifida or a similar birth defect of the brain and spine. Each year, about 3,000 pregnancies involve these birth defects.

Oct 6 Jannette had the opportunity to speak at Tacoma Golf and Club.

Oct 6 Jannette had the opportunity to speak at Tacoma Golf and Club. Thanks to the Madigan Major General for great letter of recognition.

What Jannette has been up to since returning from Ms. Wheelchair America

Jannette has been very busy these last few months since returning from the National Ms. Wheelchair America Pageant. As the current 2010 1st Runner Up Ms. Wheelchair America, Jannette has been in demand and working hard in Washington state as an advocate, community leader and overall inspiration for people with and without disabilities. I am so proud of her and to call her my friend too!

~Tammy Wilber

Ms. Wheelchair Washington State Coordinator

Jannette feature in Northwest Guardian

Link to Newspaper article in Northwest Guardian
http://www.nwguardian.com/103/story/6034.html
Report from Ms. Wheelchair WA, Jannette Saxton 10/2/2009
The Fort Lewis Installation Newspaper, the Northwest Guardian came to my workplace at The Soldier Readiness Center to compose a beautiful article regarding my experience at Ms. Wheelchair America 2010 in Rapid City, South Dakota. Staff writer and former Servicewoman Laura Levering captured the essence of Ms. Wheelchair Washington Program. Many thanks to photographer Ingrid who took some amazing pictures to accompany the story. We encountered a positive response from Soldiers and civilians alike. Thank you again.- Jannette Saxton, Ms. Wheelchair Washington 2009

Beginning of article:

A beauty queen with a message
www.nwguardian.com
Jannette Saxton, 2009 Ms. Wheelchair Washington, finished first runner up at the Ms. Wheelchair America competition held Aug. 29 in South Dakota. Saxton works as a U.S. Army mobilization and deployment specialist at Fort Lewis.

Oct 4 Ms. Wheelchair Washington was given 2 coins when she met with the General

She receieved one coin from the General and one coin from the Col at Madigan.

Jannette says, “It was a pleasure to meet the LTC with the Wounded Warriors. He is an incomplete SCI and serves us proudly. THANK YOU!”

Report from Ms. Wheelchair WA, Jannette Saxton 10/2/2009
As part of Disability Awareness month I have been proud to take part in numerous events this October. The Wounded Warrior Battalion welcomed Brigadier General Munson as part of their Town Hall visit and meeting with Fort Lewis’ Soldier and Family Resource Center where wounded and their Families come to take part in the rehabilitation process and bond with one another. General Munson and Colonel Keller of Madigan Army Medical Center arrived to think the Wounded Warriors and their Families for their sacrifice at home and overseas.

I was honored to receive two recognition of excellence coins from the Colonel and Brigadier General who wished to acknowledge The Ms. Wheelchair Washington’s deep commitment to Veterans living with disabilities. I wish to take a moment to recognize the courage of Lieutenant Colonel (LTC), Danny Dudek, and the Wounded Warrior Battalion Commander for the installation. LTC Dudek has incomplete spinal cord injury and serves bravely alongside other Service Members who have experienced the impact of disability and the meaning of service to fellow man. It was a joy to meet a leader so passionate about the well-being of his Soldiers.

In my time as Ms. Wheelchair Washington I have continually expressed a deep to overflowing well of gratitude for those men and women who have and are currently served in the United States Armed Forces. I felt a deep sense of pride in my country as well as being a member of population that daily, optimistically overcome obstacles to make a difference and shine by example. I will treasure my coins always aware of the influence positive, compassionate and inspiring leadership can have on those on a magnificent journey of wellness.

Bates Technical College, Disability Awareness Day, Featuring Ms. Wheelchair Washington and Keynote speaker, Mark Wellman

Jannette enjoyed speaking at Bates.
“Thanks to the people from Seattle Adaptive Sports and Tacoma Metro Parks as well. Mark Wellman is amazing!”

Report from Ms. Wheelchair WA, Jannette Saxton 10/15/2009
I thoroughly enjoyed acting as the Master of Ceremonies for Bates Technical College’s, (Tacoma Campus), Disability Awareness Day. The key note speaker Mark Wellman sustained a spinal cord injury after falling during a rock climb. Mr. Wellman lives by and speaks to the philosophy of “No Limits.” He has made extraordinary efforts to include all individuals regardless of abilities or physical limitations in climbing and other execrating outdoor activities such as mountain climbing and biking. The audience watched a video that highlighted the artistry and beauty of disabled body border, a hang glider, para-sailor and a scuba who wildly pursued their passions. Mark spoke to the creation and use of specialized climbing gear for individuals unable to use their legs to climb. I was inspired by Mark’s focus and drive. His story was truly an encouragement to those who have wondered just what to do with those mountains in their way. After listening to Mark my advice is to simply start climbing and upon reaching the summit you may just find the victory has been in the brilliance of the journey. As you oversee the valley below; you may discover your struggles and triumphs have in fact blazed a unique trial of accomplishment for those coming after you looking to conquer their fears and live in victory; using what was met to hinder you for the good and benefit of your community.
For more information on Mark Wellman

http://us.mc529.mail.yahoo.com/mc/compose?to=info@nolimitstahoe.com
www.nolimitstahoe.com

Jannette featured on Army Media TV

October 18th:
Update on Jannette Saxton Ms. Wheelchair Washington 2009/ 2010 1ST Runner up, Ms. Wheelchair America:

Link to Story about Ms. Wheelchair Washington on
The Army Media Player is the official video player of the US Army.
http://www.army.mil/media/amp/?bcpid=6981683001&bctid=44772271001

Reception held in honor of Ms. Wheelchair Washington:

Reception held in honor of Ms. Wheelchair Washington:
Report From Jannette, 10/18/2009
“Tonight precious church home in Steilacoom is holding a reception in recognition of my time as Ms. Wheelchair Washington 2009. Thank you to my friends and family for praying a supporting me. Your love and generosity have spurred me on the amazing place I am today. Thank you”

Oct 26th- Jannette attendees Disability Awareness Day at Pierce College

Oct 26th- Jannette attendees Disability Awareness Day at Pierce College
Jannette Saxton “Speaking at Pierce College Puyallup Campus for Disability Awareness Day! It was wonderful to attend! Thanks so much to everyone for your ongoing support of the Ms. Wheelchair WA Program!”

Here is an article about the event: http://www.pierce.ctc.edu/news/?m=200810
For more information, contact Patrick Murrell via phone at (253) 864-3301 or via email at pmurrell@pierce.ctc.edu.

http://www.pierce.ctc.edu/news/?m=200810

Ms. Wheelchair WA and Power wheelchair soccer

Oct 27th
Jannette Saxton Ms. Wheelchair Washington INVITED TO plays wheelchair soccer
Report from Jannette: 10/27/09
“Thank you to the great people at Pierce College, and thanks to Tom for inviting me to play soccer with the Rollin' Thunder!”

For more information on the Rollin Thunder and Wheelchair Soccer, visits their website:
http://www.rollingthundr.org/index.htm

Nov 5th: FORT HOOT SHOOTING:

Nov 5th: FORT HOOD SHOOTING:
Jannette says “Thoughts and prayers with the fine people of Ft. Hood. Keep the families of those who have been killed in your prayers!
Jannette Saxton http://www.cnn.com/2009/CRIME/11/06/fort.hood.munley/index.html

Nov 9th: Jannette was invited to speak at for an organization called MOPS

“Mothers of Pre-Schoolers” conference- She spoke about what it is like being a child with a disability
MOPS stands for Mothers of Preschoolers. MOPS International exists to meet the needs of every mom - urban, suburban and rural moms, stay-at-home and working moms, teen, single and married moms - moms with different lifestyles who all share a similar desire to be the very best moms they can be! MOPS recognizes that the years from infancy through kindergarten are foundational in a mother-child relationship and are filled with unique needs.
MOPS photo:
MOPS website: http://www.mops.org/

Ms. Wheelchair America Documentary: DEFINING BEAUTY

Nov 10th- Have you heard of the documentary called “Defining Beauty: More than Just a Sash and a Crown? Jannette Saxton, Ms. Wheelchair Washington will be featured in the documentary. Here is more information about the documentary
Ms. Wheelchair America Documentary: DEFINING BEAUTY

Description:
MS.WHEELCHAIR AMERICA is a feature length documentary focusing on the extraordinary lives of the women of Ms. Wheelchair America and their journey toward the 2010 Ms. Wheelchair America pageant. It is the story of women who challenge themselves on a daily basis to live life beyond their limitations and by doing so, redefine the perception of beauty and what it means to be disabled.Women from twenty-seven states, with different disabilities, compete in this national competition every year. Since 1972 the mission of Ms. Wheelchair America has been to “provide an opportunity for women of achievement, who happen to be wheelchair users, to successfully educate and advocate for the more than 52 million Americans living with disabilities.” Unlike traditional beauty pageants, this is not a contest to select the most attractive contestant, instead it’s a competition based on “advocacy, achievement, communication and presentation to select the most accomplished and articulate spokesperson for individuals with disabilities.”

Here is their website: http://definingbeautydoc.blogspot.com/
Facebook page: http://www.facebook.com/group.php?gid=60228618490
Here is a YouTube video to give you an idea of what the documentary is going to be like: http://www.youtube.com/watch?v=P6Cn09NIOZo

Nov 11th- Veterans Day

During this past year, Jannette has had the opportunity to be a VIP guest at the National Veterans Games, and meet many members of the Northwest Paralyzed Veterans of America Chapter and on this Veterans Day, Jannette has this to say”
“Thank you to the men and women who have served so tirelessly to protect America's shores and have selflessly left their loved ones behind to serve overseas! Happy Veterans Day, the country is better and brighter because of you!”
Jannette Saxton, Ms. Wheelchair WA 2009

Jannette & Soldier at Mariners Game

November: Logan Magazine Feature:

Over the summer Jannette, myself (Tammy Wilber) and Logan Olsen, Founder and CEO of Logan magazine had a chance to have lunch at Nordstrom Café in Spokane, WA. Logan created a magazine a few years ago after she sustained a brain injury at 16 years old.

The mission of Logan Magazine is to inspire, encourage, and inform young people with disabilities about how to lead a lifestyle that is productive, purposeful and pleasurable. Their goal is to motivate young people to live, work, play, dream big and look great experience all life has to offer.
Support a great magazine by subscribing at the website:
http://www.loganmagazine.com/
Logan magazine and the Ms. Wheelchair Washington Program has a lot of the same values and that is to encourage people with disabilities in Washington and nationally, to
“Live life to the fullest, despite whatever challenges we all have and to make dreams come true!”

Four Police Officers Were Shot and Killed in Ms. Wheelchair Washington's hometown of Lakewood, WA

11/30/09
Jannette Saxton, Ms. Wheelchair WA 2009- Lives in the town of Lakewood, WA, where there were 4 officers shot and killed at Parkland Forza today.
Jannette says “She sends her prayers and may God be with their families and the police force.”
http://seattletimes.nwsource.com/html/localnews/2010482691_apusofficersshotpa4thldwritethru.html

We all have to be so thankful for the officers that risk their lives everyday!

December 6th- Congratulations to Jannette Saxton on buying her first house!!!

It has been a very busy year as Ms. Wheelchair Washington and through this year, Jannette has done so many incredible things. I am so excited for her and her success, even during these hard times she has bought her first accessible house. I know this is a huge success for anyone and I know it will make her quality of life that much better!! I can't wait to have a get together!! As State Coordinator of the pageant, I have the honor of getting to know each contestant and title holder every year. I am so blessed that the last few Ms. Wheelchair Washington's have become some of my dearest friends!
I am so happy for you Jannette and wish you much happiness in your new home
~Tammy Wilber
Ms. Wheelchair WA State Coordinator

Article about Jannette

A beauty queen with a message
Deployment specialist finds many things to be grateful for
Laura M. Levering/Northwest Guardian
Published: 01:03PM October 1st, 2009

Ingrid Barrentine/Northwest Guardian
Jannette Saxton, 2009 Ms. Wheelchair Washington, finished first runner up at the Ms. Wheelchair America competition held Aug. 29 in South Dakota. Saxton works as a U.S. Army mobilization and deployment specialist at Fort Lewis.
She dons a crown, wears a sash, occasionally puts on a gown and has a smile that “lights up a room,” but Ms. Wheelchair Washington 2009, Jannette Saxton, hardly considers herself a beauty queen.
Saxton, a deployment specialist at Waller Hall, said the pageant is about more than external beauty.
Born with cerebral palsy and wheelchair-bound her whole life, the 31-year-old Lakewood resident said her friends and coworkers encouraged her to enter the Ms. Wheelchair Washington pageant after “Googling” it to see whether such a program existed. When she discovered it did, Saxton began the application process with hopes of making a difference for others with disabilities.
“As a young person, I didn’t have many mentors who had used wheelchairs or had physical disabilities and yet pursued independence in their dreams,” she said. “I saw people who perhaps didn’t have a way of educating themselves or being independent in mind.”
Saxton, on the other hand, was raised by her parents to be independent. She said she had an “above average” childhood compared to most others she knew in wheelchairs.
“My family never allowed me to see my disability as an excuse not to try,” she said.
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Instead, they tried to understand the social awkwardness of being in a wheelchair and impressed upon Saxton the importance of using her intelligence, wit and emotional abilities to be a contributing member of society.
“When I was younger, my mom had to explain to me that I couldn’t be a ballerina, and I obviously wasn’t going to be the next track star,” she joked.
“They understood moments like that.”
Saxton’s mainstream education, abundance of health care resources and pursuit of higher education helped her become the contributor her parents spoke of. Her accomplishments include a bachelor’s degree in journalism and public relations from Arizona State University, followed by a master’s degree in counseling from the University of San Diego.
Despite her physical beauty, educational background and zeal for life, Saxton said she was shocked when she was crowned Ms. Wheelchair Washington 2009 at the Northwest Paralyzed Veterans Association in February. Adding to her surprise was a recent victory as first runner-up at the nationwide pageant.
“I was thrilled, but there were other very qualified women involved, and I really believe any of them would’ve represented us very well.”
Representation. That’s what the pageant really comes down to, said Tammy Wilber, state pageant coordinator and Ms. Wheelchair Washington 2006.
“It’s a way for a woman, who happens to be in a wheelchair, to get out there and really do something positive for the disabled community,” Wilber said.
Saxton said she hopes to do just that by achieving confidence through inspiration, optimism and nurturing. Simply put, she’s taking action.
“Disability is one of the things that regardless of ethnicity, religion, age or socioeconomic status, can affect anyone.”
Saxton’s status has afforded her the opportunity to speak at public forums and meet with disabled people of all backgrounds. Vietnam veterans are one group she is particularly fond of for their sacrifices.
“Because of their willingness and courage to pursue legislation and equal rights, now I have the right to be gainfully employed and seen as viable amongst my peers,” Saxton said. “I really owe them my gratitude for their courage on and off the battlefield.”
Saxton said one thing she wishes people understood is that everyone has some kind of mountain to climb in life; some just happen to be more visible than others.
“I have encountered people that emotionally have been through so much, but they don’t know how to wrap their minds around it enough to take another step … to me, that is just as disabling as some physical disabilities,” she said.
Her advice is to look for ways to help somebody, regardless of physical status.
“You can heal emotionally and spiritually if you find a way to help somebody else,” she said.
Her ability do so is one of many qualities that make Saxton perfect for the titles she holds as Ms. Wheelchair Washington and a deployment specialist.
Between working with paralyzed veterans and deploying Soldiers on a daily basis, Wilber believes Saxton is in a unique position that will enable her to bring about positive change.
“She makes such a connection with Soldiers before they leave that if they come back injured, maybe they’ll remember (Saxton) and think, ‘If she can do it, I can do it.’”
Saxton looks forward to continue working with Soldiers and getting more involved with the Paralyzed Veterans Association of America.
With an uncertain but positive outlook on the future, Saxton said she’s open to whatever comes her way.
“Hopefully, I can continue to make a difference by having people realize that limitations never define you. What defines you is the difference you’ve made in others’ lives.”
Laura M. Levering: laura.may.levering@us.army.mil